Tuesday, January 11, 2011

oops sorry it's taken so long....

Note - this was written ages ago - in mid November but never posted.... I promise to start writing again regularly!


It is hard to imagine what we should write in our blogs now... looking through the previous posts we are deeply reminded of how glad we are to be here, not there!

Though of course there are still matters, less significant, to report. About ten days ago we visited cardiology for Oscar's four week (give or take) post-op checkup. We have a lovely photo of Oscar with his chief cardiologist and the man who originally gave us the news, Jonathan Skinner. Great you are. Oscar had an ECG, a measure and a weigh, an O2 saturation taken, and an X-ray and Dr Skinner was happy with all his results - No Problem! So we are heading back there in another four months and in ever diminishing regularity until Oscar Noah is hopefully discharged - he'll always be a heart kid though, and, needless to say, to all you lot in the ward and in the team, we think of you all often, with love, and will continue to do so.

Afore-mentioned Dr Skinner (in the blue with glasses) (he really knows how to hold on to a baby!)... Mst Oscar Noah, and the unmistakeable and ever-reliable Mr Monkey Oswald Rigby (please do not note strange drawing on whiteboard! I'm sure it is a heart... valve or something)


So without delay onto other news! We met with Oscar's plastic surgeon on Friday - he is in charge of his lip and nose repair and some other stuff. It generally happens between three and five months, of course just when we were in Starship. So we were hoping it might be in line for us this side of Christmas, but as it has turned out, the surgeon feels that we can get a better result if we wait until Jan or Feb 2011 and Mum and Dad make a concerted effort on the taping across his lip. It is fair to say that we let this task slip a little during our Starship stay and struggled with it before we were called up for the heart repair. Nonetheless, we are back on the horse now and in fact Oscar seems pretty relaxed about the tape situation now, whereas before it seem to agitate him no end.

So, comparatively, nothing really to report except some extremely healthy weight gains, visits with home care nurses who seem to come around because they want to see Oscar rather than because it is a job, and a bit of relief maybe to think that we are off the hook for a few more months to rest and enjoy our lovely son at home, before any more major interruptions!

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