Surgery update

We are still living here at Starship (well one parent at a time and one Oscar). It’s been a testing few days but there may be some light at the end of the tunnel… rumour has it that they are planning to do Oscar's surgery on Thursday (today is Tuesday, so hopefully they’ll let us know soon). We should find out in the morning, but I’ve been saying that for a few days now….

Even if they tell us in the morning that they have it scheduled for Thursday, it is subject to change – mainly a bed being available in intensive care and being bumped by a more urgent case, so we’re on tender hooks. 

So far we know that after the surgery he’ll spend one or two days in intensive care (ICU) and then a few more days in the high dependency unit (HDU), which is part of the heart ward we are in now. During those times, Brennan and I can stay in a room in another part of Starship, then when he is well enough to go back into his own room we can return to the routine we are in now, where one of us can stay overnight with him.

Oscar is doing his best in the circumstances and continues to gain weight, albeit slowly. We had a frustrating day yesterday where he vomited a few times and so failed to gain much weight due to the high calorie formula they were trying him on - ironically to put more weight on (I think the phrase is - "Aaaaarrrgghh!!??!!??!").

We are hoping for smooth sailing tonight though as I am feeling the effects of the four pj and sheet changes last night!

It’s hard to keep the blog up to date with very limited internet access, but we will do our best! Fingers crossed it’s all systems go this week… and you will be the first to know... possibly even before us. 

Sounds like tomorrow is going to be tough day - firstly hopefully finding out more, but they are planning to do pre-op tests and preparations on Oscar Noah and going through the consents and stuff with his parents... so another day of the pocks and prods, the interupted sleeps (for all of us!), the out of time feeds, and general palava of being in there, and right next to the ward's reception desk. 

So for the next few days, please feel free to call but we need to keep visits to a minimum, and we will keep you posted.

love